In recent years we have become concerned that the questionnaires used to measure aspects of diabetes care, including diabetes knowledge, self-efficacy for self-care and mental health status, were compromised when the individuals completing the forms were not as proficient in English as other people.
In our research in people with Type 2 diabetes from South Asian backgrounds many individuals speak a language that is only spoken and not written and rely on friends or relatives to support them in their clinic appointments. It is therefore no surprise that, despite a willingness to participate in research, there are challenges when it comes to obtaining written informed consent to participate and obtaining written responses to questionnaires.
Thanks to funding from Diabetes UK, we have now developed several new questionnaires designed for self-complete audio completion in both English and 2 South Asian languages - Sylheti and Mirpuri. In collaboration with service-users from the local Bangladeshi and Pakistani communities, the Brasshouse Translation Unit in Birmingham and Professor Tom Fitzgerald at the Michigan Diabetes Research Centre, we have developed the following audio questionnaires:
- Diabetes Knowledge Scale (multiple choice)
- Diabetes Knowledge Scale (True/False version)
- adapted PHQ-9 (translated into Sylheti, Bengali, Mirpuri and Urdu)
- adapted WHO-5 (translated into Sylheti, Bengali, Mirpuri, Urdu).
Full details of the development of these questionnaires can be found in the following publications:
Lloyd CE, Sturt J, Johnson MRD, Mughal S, Collins G and Barnett AH. Development of alternative modes of data collection in South Asians with Type 2 diabetes. Diabetic Medicine 2008;25(4):455–462.
Lloyd CE, Johnson MRD, Mughal S, Sturt JA, Collins GS, Roy T, Bibi R, and Barnett AH. Securing recruitment and obtaining informed consent in minority ethnic groups in the UK. BMC Health Services Research 2008; 8:68.
Collins G, Mughal S, Barnett AH, Fitzgerald JT, Lloyd CE. Modification and validation of the revised diabetes knowledge scale. Diabetic Medicine 2010;28:306-310.
If you wish to use any of these questionnaires please contact me.
In our research in people with Type 2 diabetes from South Asian backgrounds many individuals speak a language that is only spoken and not written and rely on friends or relatives to support them in their clinic appointments. It is therefore no surprise that, despite a willingness to participate in research, there are challenges when it comes to obtaining written informed consent to participate and obtaining written responses to questionnaires.
Thanks to funding from Diabetes UK, we have now developed several new questionnaires designed for self-complete audio completion in both English and 2 South Asian languages - Sylheti and Mirpuri. In collaboration with service-users from the local Bangladeshi and Pakistani communities, the Brasshouse Translation Unit in Birmingham and Professor Tom Fitzgerald at the Michigan Diabetes Research Centre, we have developed the following audio questionnaires:
- Diabetes Knowledge Scale (multiple choice)
- Diabetes Knowledge Scale (True/False version)
- adapted PHQ-9 (translated into Sylheti, Bengali, Mirpuri and Urdu)
- adapted WHO-5 (translated into Sylheti, Bengali, Mirpuri, Urdu).
Full details of the development of these questionnaires can be found in the following publications:
Lloyd CE, Sturt J, Johnson MRD, Mughal S, Collins G and Barnett AH. Development of alternative modes of data collection in South Asians with Type 2 diabetes. Diabetic Medicine 2008;25(4):455–462.
Lloyd CE, Johnson MRD, Mughal S, Sturt JA, Collins GS, Roy T, Bibi R, and Barnett AH. Securing recruitment and obtaining informed consent in minority ethnic groups in the UK. BMC Health Services Research 2008; 8:68.
Collins G, Mughal S, Barnett AH, Fitzgerald JT, Lloyd CE. Modification and validation of the revised diabetes knowledge scale. Diabetic Medicine 2010;28:306-310.
If you wish to use any of these questionnaires please contact me.